Hello! Greyson is still doing great! They have been able to ween his vent a lot in the last couple of weeks and he has handled it beautifully! They are even talking about trying him off of the vent if we can ween him down a little further! Very exciting! We'll just have to see how it goes. They said there is a possibility that maybe we could take him off in the day time and put him back on it during the night or even for short periods of time during the day if he needs it. That's the nice thing about having a trache, you can easily go back and forth between the vent which is common during the weening process in a baby that has been on a ventilator this long. If he doesn't tolerate any of that then we will most likely go to a home vent and just ween him off of it very slowly. Greyson has still been very happy for the most part, he is holding his head a lot better, reaching for his toys and is very active! He has gotten to where he doesn't love to be laying in the bed all the time! He likes to sit up and loves to be held! I know I say this all the time but he seriously has to have a tooth ready to come through soon! His hands are constantly in his mouth and he has started chewing on some of his toys! We are still having some issues with his electrolytes due to his kidneys. Please continue to keep him and us in your prayers as Greyson will most likely have to have dialysis in the future. But as of right now we are so thrilled and thankful that Grey really is doing very well and has come so far in the past few months! Psalm 3:3 " But you, O Lord, are a shield for me, my glory and the lifter of my head."
Yummy hand!
His favorite past time- watching a movie =)
Sweet boy!
Peek a boo!
