The Edwards Family

Tuesday, April 19, 2011

Home Vent

Been another crazy couple of weeks! Our doctor decided to go ahead and try Greyson on a home vent last week. They have decided that they would like for him to be on that vent when and if he has to go on dialysis. I think its more for mobility purposes. As long as he's on a regular vent he has to be in an icu unit. If he's able to transition to a home vent then they can move him to the pulmonary floor. And right now they feel like that would be best for Greyson. It's a much smaller unit and they deal with these chronic bpd (lung issues) babies. I met the main Pulmonary doctor yesterday and I really liked him! He was very positive and was impressed with how well Grey is doing. He said they can also do the dialysis in that unit! Anyway they put him on the home vent on Wednesday but by Sunday he was back on the regular vent =( just really didn't love it. So the plan is to let him rest for another week(ish) and try again. The pulmonary doctor said he would make sure to come up and see if he can tweak some things to Greyson's liking. Since that's what he deals with everyday maybe he'll have a few pointers. We're hoping and praying that things go better next time and that he won't hate it =( he was really pitiful last week. If he was awake he was fussing. So no fun! But literally as soon as they put him back on this vent he was a happy camper! Wish they made it in a smaller version =/ Continue to keep us in your prayers! Greyson will most likely be having some big changes happen in the next few months. We're hoping and praying he tolerates them well and Paul and I can take this baby home soon! Here's a few pictures:


Philippians 1:6 Being confident of this, that He who began a good work in you will carry it on to completion until the day of Christ Jesus.


  1. I am always thinking of you and you're family and what you have gone through... you are amazing and strong and an inspiration to me. I am so thankful to know you. You and your family are in my prayers.

  2. Thank you for sharing your journey with us. You have a precious baby, a wonderful gift from God. HE chose you and your husband to be the wonderful parents of this sweet baby boy because HE knew you are strong and able to take care of HIS child. Bless you all!!!