Happy Spring!

Never a dull moment around here! Greyson is doing really well THIS week! Last week on the other hand was kinda crazy! His kidneys were giving us a run for our money! To the point where our kidney doctors were talking dialysis =( What happened was after his surgery all of his electrolytes got out of wack because we had to stop his feeds and go on iv fluids. Well the way his kidneys work we have to give him many supplements thru his feeds to keep up with everything that his kidneys get rid of instead of hold onto like their supposed to do. This sounds pretty simple but the docs and practitioners have it down to a fine art. Anyway at one point they got behind on his fluids and he got slightly dehydrated (Not as bad as it sounds but his kidneys need to be wet wet wet) which caused his creatnin to go up wich made the docs overload him with fluid which in turn helped his creatnin but his kidneys just flushed everything out with it. So his electrolytes were seriously out of wack. On Friday the renal docs said they wanted to have a meeting with us on monday (never a good thing) Thankfully because we have the best doctors and practitioners in the world! And they know Greyson so well they were able to get everything back in line by Monday and we actually had a very positive meeting with the doctors! Praise the Lord! This momma was seriously worried! They are all very encouraged by the improvements he's making pulmonary wise. On another note. Our neonatologist (who we LOVE by the way!) wanted to try Greyson on this new type of ventilator they've recently had come available. Its called a NAVA vent. Paul could explain this much better than I can but my understanding is it picks up the signal the brain sends to the diaphragm telling him how deep and how long of a breath he needs to take and gives him that. So it's totally insync with what he needs, cutting down on unneeded breaths and pressure allowing his lungs to relax and grow stronger. Only down side is he has to have a tube down his nose =( Just thought we got rid of those! Its the probe that actually gets the signal from that nerve in his diaphragm. Anyway he's been like a different baby since they started this! He's so happy and relaxed! And they've already been able to ween it down some. Went from a not so great week last week to this week which has been awesome and we are so so thankful!! We love you all and are so appreciative of your continued support and prayers! Psalm 41:10 Fear not for I am with you; be not dismayed, for I am your God. I will strengthen you. I will help you, I will uphold you with my righteous right hand.

We have to keep socks on his hand a good bit because he likes to yank that tube out of his nose! (I don't blame him)

Update

Greyson has done very well after his surgery! He's been a trooper! We had a few issues with his feeding tube a couple days after he got it so he had to go back downstairs to have it checked out. Always fun to get a baby on a ventilator from the 7th floor to the 2nd (Not!) But he handled it all really well and everything checked out fine! He's almost back up to his full amount on his feeds and so far so good. One thing you all could pray for are his kidneys. Recently having some blood pressure and growth issues related to his kidneys. His blood pressure has been really high so they started a bp med yesterday and upped his fluids a good bit. So far it seems to be helping. His creatnin (how they determine his kidney function) was down a good bit this morning. That's a good thing! Lower the better. His growth seems to have dropped off a little bit which is also related to his kidneys. He's been on a growth hormone for probably over a month now and I think they were hoping to see more of a difference by now. This is definitely not something he's ever had an issue with! In his short 15 months he's already been on a diet! So normally growth is not an issue! But besides all that his doctor said he feels like he's doing very well! His lungs seem to be improving which is a huge answer to prayer! Here's a few pictures from a couple nights ago before we gave him his bath:

Greyson's room

His movies and books

His blankets and clothes have to coordinate =)

Favorite soap right now: Honey Apple! Thanks Aunt Jenn!

He's thinking 'If I ignore her, she'll go away'

Can u tell He hates bath time?!  What are you about to do to me?

Needless to say I have no pictures of the actual bath! They wouldn't be pretty! =) Thanks for checking! Love you guys!