Home Vent

Been another crazy couple of weeks! Our doctor decided to go ahead and try Greyson on a home vent last week. They have decided that they would like for him to be on that vent when and if he has to go on dialysis. I think its more for mobility purposes. As long as he's on a regular vent he has to be in an icu unit. If he's able to transition to a home vent then they can move him to the pulmonary floor. And right now they feel like that would be best for Greyson. It's a much smaller unit and they deal with these chronic bpd (lung issues) babies. I met the main Pulmonary doctor yesterday and I really liked him! He was very positive and was impressed with how well Grey is doing. He said they can also do the dialysis in that unit! Anyway they put him on the home vent on Wednesday but by Sunday he was back on the regular vent =( just really didn't love it. So the plan is to let him rest for another week(ish) and try again. The pulmonary doctor said he would make sure to come up and see if he can tweak some things to Greyson's liking. Since that's what he deals with everyday maybe he'll have a few pointers. We're hoping and praying that things go better next time and that he won't hate it =( he was really pitiful last week. If he was awake he was fussing. So no fun! But literally as soon as they put him back on this vent he was a happy camper! Wish they made it in a smaller version =/ Continue to keep us in your prayers! Greyson will most likely be having some big changes happen in the next few months. We're hoping and praying he tolerates them well and Paul and I can take this baby home soon! Here's a few pictures:

 Playing!

Philippians 1:6 Being confident of this, that He who began a good work in you will carry it on to completion until the day of Christ Jesus.

Greyson's Room!

So the past few weekends I've been able to come home and work on our new house! Paul and I recently moved into a new home (new to us) It was a foreclosure and we've been working on it for what seems like forever =) Recently I realized that I hated Greyson's room =( It looked like it was just an after thought and I just kinda threw some stuff in there. So my mom, sister and I have been working on it and its now my favorite room in the house and I just had to show it off =)

Letters I made for his wall

 

Curtains my sister made =)

Rug my Mom bought

All of it in the room!

Paul's mom bought these adorable animals forever ago and I finally got to use them!

Don't look too close =) I don't have knobs on the dresser yet because I want to stain it darker =)

Another view

 So now Greyson has a room to come home to! Still have no idea when that will be but He is still doing well and making progress so hopefully it'll be sooner rather than later!

Doing good!

Hello! Greyson is still doing great! They have been able to ween his vent a lot in the last couple of weeks and he has handled it beautifully! They are even talking about trying him off of the vent if we can ween him down a little further! Very exciting! We'll just have to see how it goes. They said there is a possibility that maybe we could take him off in the day time and put him back on it during the night or even for short periods of time during the day if he needs it. That's the nice thing about having a trache, you can easily go back and forth between the vent which is common during the weening process in a baby that has been on a ventilator this long. If he doesn't tolerate any of that then we will most likely go to a home vent and just ween him off of it very slowly. Greyson has still been very happy for the most part, he is holding his head a lot better, reaching for his toys and is very active! He has gotten to where he doesn't love to be laying in the bed all the time! He likes to sit up and loves to be held! I know I say this all the time but he seriously has to have a tooth ready to come through soon! His hands are constantly in his mouth and he has started chewing on some of his toys! We are still having some issues with his electrolytes due to his kidneys. Please continue to keep him and us in your prayers as Greyson will most likely have to have dialysis in the future. But as of right now we are so thrilled and thankful that Grey really is doing very well and has come so far in the past few months! Psalm 3:3 " But you, O Lord, are a shield for me, my glory and the lifter of my head."

 Yummy hand!

His favorite past time- watching a movie =)

 Sweet boy! 

Peek a boo!